This is really beautiful. It sounds like your family handled it amazingly. It can be so tough.
Jeremy has aphasia. It is the most awful thing. His thinking is often perfectly lucid, but the words that come out of his mouth aren't the ones he intends, so the people around him can't understand them. His sentences are grammatically correct, but Chomskyan: "I have too many copies of my foot." So spending time with us is often painful for him, because he can't make himself understood, and for us as we strive to interpret what he meant.
There is so much love, though. I can't begin to tell you. At times I find myself thinking, "This is what it would be like to have a child." I mean, I love Weezie (my niece) to distraction, but not with quite the same tenderness and intensity.
TL; DR: it's a beautiful experience and I would not trade it, even though it's heartbreaking. I miss him, though.
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timeasmymeasure
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Date: 2020-07-24 06:53 am (UTC)This is really beautiful. It sounds like your family handled it amazingly. It can be so tough.
Jeremy has aphasia. It is the most awful thing. His thinking is often perfectly lucid, but the words that come out of his mouth aren't the ones he intends, so the people around him can't understand them. His sentences are grammatically correct, but Chomskyan: "I have too many copies of my foot." So spending time with us is often painful for him, because he can't make himself understood, and for us as we strive to interpret what he meant.
There is so much love, though. I can't begin to tell you. At times I find myself thinking, "This is what it would be like to have a child." I mean, I love Weezie (my niece) to distraction, but not with quite the same tenderness and intensity.
TL; DR: it's a beautiful experience and I would not trade it, even though it's heartbreaking. I miss him, though.